June is Landy Month!
June 25, 2003 a little guy named Landon came onto the scene at 4lbs 9 oz! He was so little and so precious, I did not get to spend much time with him to begin with because the medical staff knew something was wrong. Landon’s eyes were spaced part and his nose was longer and he did not have much of a chin. All signs of Wolf-Hirschhorn Syndrome, a deletion of the 4th chromosome.
That day our world changed dramatically, we now had nurses, specialists, doctors and staff that we dealt with every day that began to feel like family. When the world says “it takes a village ” they are not kidding it totally does!
One thing I learned about myself in that critical time was that I was strong, I was resilient and I was a warrior. I also learned that I could not let fear dictate how I would live life. We needed to live cautiously but not fearfully. This was God’s child and he was just lending him to me. I remember thinking “this isn’t the end of the world, it’s just the beginning of a different one”.
Being resilient was crucial. There was some pretty. traumatic things I did not talk about in my book. Like the time I refused too many nurses for being under qualified and the agency literally called CPS (Child Protective Services) on me…like what??? Me??? The county worker came and did an interview, I showed the worker the list of why I turned them away and before she left she said. “you are amazing', is there anything I can do for you? I giggled and said “we could use a food card” the next day she dropped off a food and gas card.
That was only the beginning of advocating for our new little miracle boy.